Well, I never ever thought this day would come.... but for the past few months I've been seeing a urologist, and even had a minor procedure done to fix a problem with my bladder.... and when I saw my surgeon this week I got told the most unexpected thing ever.
"You are definitely celiacs."
I stared at him, mouth dropped open. "What? No, I've had tests, and they were clear...."
"Nope. You're celiacs."
He's got patients with the same problems as me, with celiacs, and he says that's what I've got and been struggling with since I was a kid.
I know it's not a gold standard test, so the reality is most people will still say 'well you weren't proven to have it so no you're not', but for MY piece of mind, for my mum's piece of mind, this is.... staggering news. And it's nice to have someone say 'this is what you're dealing with'.
I feel like I have been fighting for YEARS for this answer. Actually, I have. And it's nice knowing all the immune system reactions, the sores I get in reaction to gluten, the intestinal and bladder inflammation.... is not in my head, because there is actually a cause.
Fingers crossed he tells that to my GP as well, because she wants to say I've got it but needs a specialist to say so as well.